Our family is participating in a research study at UCLA. Today Joey and I spent 7 hours taking all sorts of tests in an effort to help researchers identify a genetic component to ADHD (attention deficit hyperactivity disorder).
We did all sorts of things, ranging from simple IQ tests to blood tests to brain wave mapping. We did mental math, we spelled, we made shapes with blocks. We stared at a dot on a computer screen with an electrode cap on our heads. We answered lots of questions about our learning styles and showed off our right-brain vs. left-brain dominance through the exercises that were administered. Surprisingly, we both had a lot of fun!
Joey was diagnosed with ADHD two years ago, by UCLA, after extensive testing to see why he was struggling in school. As his teacher, I strongly suspect that he is also dyslexic, although he has not been specifically tested for this. Joey is a very smart, creative boy, and it kills me to see how difficult academics are for him and how much he dislikes schoolwork of any kind. I am sure that I could do a better job of teaching him if only I knew what techniques might be more effective for his style of learning. It was with this in mind that I contacted UCLA again this month to see if they could help me, as I did not think to have them give me a formal diagnosis with all the paperwork to go with it the last time we were there.
Happily, I learned that UCLA was currently conducting a family genetic research study that would provide me with the comprehensive diagnosis and evaluation I need in order to request special help from Joey's virtual school. Although homeschooled, Joey is technically a public school student and therefore entitled to modified curriculum, testing assistance, and other resources that may help me to reach him better. I just have to have an official diagnosis to receive these services, so off we went to get one.
The researchers are focusing on several genetic markers they have identified in children with ADHD. They believe that this is a genetic disorder and are interested to see how it runs in families. Our family, with so many children, is a dream come true for them in terms of "studyability". Lindsey, Sam and Jay will go next week and do the same things Joey and I did today. At the end we will receive a report on how we all did and where we are on various evaluative spectrums. Fascinating stuff, this is.
I, for one, did not believe ADHD was a real disorder until I had a child that clearly had it. Like so many other people, I believed that ADHD was the result of bad or lazy parenting or largely created by drug companies to sell more pills. Now that I know better, I am happy to be part of research that not only validates this as a real condition, but that will lay the groundwork for acceptable educational alternatives for children who cannot succeed with traditional curriculum. Children with ADHD are generally very bright and often have special gifts to compensate for their difficulty in traditional education. The researchers I worked with today celebrate and support the child with ADHD rather than attempt to stifle or routinely medicate him, and I love that.
As much as I enjoyed today, I now have a new respect for research subjects. The whole thing was exhausting and mind-numbing! Rest assured that this rat is happy to be out of the maze and back in her cage for the night.